17. What will the format of your event be?:
18. Please give any details about the format of your event you feel are relevant.:
The event will involve short powerpoint presentations, a discussion with the panel and also some hands-on demonstrations. We will demonstrate brain waves using an EEG machine. We will also introduce a study in which we are using visual tests to assess seizure risk. These tests involve subjects looking at a computer monitor and making a judgement about an image which is modified very subtly (images move either left or right, for a very brief period of time - Note that these tests are safe, even for people with photosensitive epilepsy ). Comparable audio tests are also being developed and will be showcased too. There will be opportunities for people to perform these tests (it takes about 5-10 mins per person; we will run parallel stations), data that may be used as controls for our studies of people with epilepsy. We would estimate that 20-30 people could take part, and we would willingly arrange for others to do the tests at a later time.
Venue and location to be allocated by the Festival team
20. Venue requirements:
A lecture theatre with space also to show practical demonstrations.
13. Description of the core message of your event and key topics to be covered (c.100 words):
We will present an open discussion about what epilepsy is. You will learn how common a condition it is, and what it is like to live with epilepsy in today’s society, and how the latest research may change how we diagnose and treat the condition. There will even be opportunities to participate in the research yourselves – go on, provide a data point! The panel will include scientists, neurologists, people who have epilepsy, and representatives of Epilepsy Action (www.epilepsy.org.uk).
14. Does the event have particular local relevance?:
15. If so, please indicate what this is:
There are an estimated 18-20,000 people with epilepsy in the North East
22. Do you consider that the event will attract press interest?:
23. If yes, please summarise up to 4 key points you think will be of press interest:
We will showcase the first recordings of a human seizure wavefront, work which will change the way in which we interpret EEG recordings, and perform epilepsy surgery. We will also consider using light to treat epilepsy (Optogenetics) and to assess epilepsy (tests of vision to assess seizure risk). We will set up interactive "brain function tests" (visual and auditory - not IQ tests!), which journalists could take part in, and that should offer good photograph or filming opportunities.
I am the event manager:
I am the event manager
24. Do you have any other comments you would like to make or information you would like to include?:
Epilepsy is a condition which is often misunderstood by the public. It can affect anyone, at any age and from any walk of life. There are 600,000 people with epilepsy in the UK – that’s one person in every 103. And people with epilepsy experience the condition in a way which is unique to them. There are over 40 different types of seizures and the public don’t tend to understand the range and the affect they can have on people’s day-to-day lives. This is one of the reasons that many people with epilepsy continue to face stigma and discrimination. For many people with epilepsy their seizures will come out of the blue and could happen at any point during their day. This could affect them at school, college, work and in their social life. This event will help the public to understand what happens in the brain before and during a seizure. This will help to dispel some of the myths about the condition and show quite simply how electrical bursts of activity lead to a seizure.
1. Event Manager Organisation:
2. Event Manager First Name:
4. Event Manager Address line 1:
5. Event Manager Address line 2:
6. Event Manager Address line 3:
Newcastle upon Tyne
7. Event Manager Postcode:
8. Event Manager Telephone number:
9. Event Manager Email address:
10. Which of the following areas of science does your event best fit into?:
3. Event Manager Surname:
11. Do you have a preferred day for your event to take place on?:
Saturday 7 September 2013
Sunday 8 September 2013
Thursday 12 September 2013