Welcome to Future Debates, a series of public events supported by the British Science Association.

Future Debates events are part of the British Science Association's work to make science a fundamental part of British society and culture. We want to empower many more people – not just scientists – to constructively engage in debates over the applications and implications of science in their lives, their local economy and the UK’s future.

Genome Data Privacy Debate

A genome is an entire set of DNA; all the instructions for making every part of a living thing. Our genomes can reveal a lot about us, including our likelihood to develop certain diseases. Genomic research is evolving quickly, and data is being collected from patients with rare diseases and cancers across the UK to aid our understanding in disease development and inheritance of certain traits. There’s large potential for the technology to help us create new treatments and preventative approaches.

This debate gathers experts from across the disciplines to ask questions such as: 

  • With advances in genomic sequencing and accessibility to the public, what are the implications in terms of protecting our genomic data?
  • Is it beneficial to share our genomic data?
  • Who should have access to our genomic data?
  • Should we be obliged to declare our disease predispositions? To partners? Employers? Insurers?

Join the discussion on 27th June 2016.

There will be a drinks reception from 6-6.30pm to promote initial conversation.


Note: Lecture Theatre A30 is not located in the main Lakeside Building, but can be accessed by the building labelled number 50 on the University Park map (on your right as you enter South Entrance):

Parking is available on campus and is free after 4.30pm.

Collated, anonymised data from the Future Debates series will be provided to the Chief Medical Officer for the purpose of informing policy about Genome Data Privacy. The event will not be recorded, nor will any individual be identifiable in any of this information.

Booking for this event has now closed.